Meet and greet

August 12, 2010

Alright everyone, today I’d like to introduce you to someone who is very close to me. He has been with me for quite some time now and is really a part of me. He’s my little buddy, he goes wherever I go and he does whatever I do.

I’d like you to meet Phil. My tumor.

Don’t see him? Thats OK neither do I. He’s kinda shy being only 2mm big and all. But my doctor assures me he’s there. You could say he’s really gotten inside me.

Lame tumor puns aside I’m doing well. As I said before the confirmation wasn’t a big surprise so I’ve taken the news quite well.I don’t feel any different right now after the testosterone shots (and if I did it would be psychosomatic) but they should start perking me up in a few weeks. I have no doubt that soon I will reach a level of manliness that I will be able to spontaneously grow body hair by flexing.



V is for Victory

March 24, 2010

Today I wore shoes for the first time in a week. It felt weird.

I got a CT scan and had my shunt adjusted for the first time since the surgery. I feel freaking fantastic. I can concentrate, I can look up, I just feel awesome all around.

My shunt is now set to a 1.0, where as before it was set to .5 and previously as low as .25. Dr.Hadden says that this shunt is for sure working and he’s never seen my brain ventricles this small, he said that he had assumed that my ventricles were just large and that I would die that way. Take a peak at these ventricles compared to the ones in the banner above, both my brain, but theseĀ  are with the new shunt,

I so don't even see them.

Well tomorrows the big day. I haven’t heard from the hospital yet, but I assume it will be early in the AM again. I sure hope so, the worst part about this whole ordeal (other then the whole chance of catastrophic screwups that result in death) would be that you can’t drink or eat anything before the surgery. I can deal with not eating, I don’t eat much as it is, but I have to constantly be drinking something, I’m always thirsty.

I met up with a fellow Hydrocephalus suffer and her mom yesterday, Hannah (who often comments on this blog) is awesome. I had a great time chatting with her, and it was fun to compare notes. I’m glad I made a brain buddy.

Probably won’t be posting for a few days, but I’ll come back as soon as possible.

All I want for Christmas

January 23, 2010

No? Perhaps not.