Meet and greet

August 12, 2010

Alright everyone, today I’d like to introduce you to someone who is very close to me. He has been with me for quite some time now and is really a part of me. He’s my little buddy, he goes wherever I go and he does whatever I do.

I’d like you to meet Phil. My tumor.

Don’t see him? Thats OK neither do I. He’s kinda shy being only 2mm big and all. But my doctor assures me he’s there. You could say he’s really gotten inside me.

Lame tumor puns aside I’m doing well. As I said before the confirmation wasn’t a big surprise so I’ve taken the news quite well.I don’t feel any different right now after the testosterone shots (and if I did it would be psychosomatic) but they should start perking me up in a few weeks. I have no doubt that soon I will reach a level of manliness that I will be able to spontaneously grow body hair by flexing.

This

Advertisements

:|

July 28, 2010

Doctors appointments all day yesterday and one today. Woo.

I saw the rheumatologist, he says that I have a “Connective tissue auto-immune disease”, when I asked what this meant he said “Its like Lupus, but not as bad”. He’s ordered more tests and I have future apps, as is par for the course.

The endocrinology visit was a bit more eventful, Dr.Goldstein didn’t start treatment as he wants to know more about what is causing the issues I’m having. He said he thinks I have a tumor on my pituitary gland, so I have another round of MRI’s to do. He said because my prolactin levels were so high last year when I first saw him he was concerned, so we did more lab work to see where they were at.

Basicly there are two courses of action to be taken. If the Prolactin levels are still high it means that my hippocampus isn’t talking to my pituitary gland,which means my pituitary gland isn’t telling my manly bits to do their job. I will have to take a pill every day and have testosterone shots. He said sometimes with this pill people get better and don’t have to get treatments anymore, but that I should expect to have to take it for several years at least.

The other option is that my prolactin levels have come down, which means I will just have to have the hormone replacement therapy, which means just the shots, but definitely for the rest of my life. We talked about different treatment options and the shots seem to be the best course, they are far cheaper than the patches. And while I have no fondness of needles and the thought of 27 shots a year makes me squeamish with the potential loss of health insurance money matters more than ever.

As far as the whole “He thinks I have a brain tumor” thing goes, I’m honestly not surprised or worried. This would explain why I have hydrocephalus and all my other varying problems. And as terrible as it sounds, with something like a brain tumor I can go to SSD and be all “This isn’t going away. Pay me!”

Shazbot

April 2, 2010

Well crap.

My double vision hasn’t gone away and I’ve started to feel shunty. I called Dr.Hadden’s office and they recommend that I see a neurosurgeon here in Nebraska.

This presents a problem in that I’m still entirely uninsured and VIM won’t cover me here. I called Dr.Poocioni, the neurosurgeon who took care of my little brother’s spinal surgeries. He is having me make an appointment with his office next week as well as an appointment with an optometrist. My Mom has repeatedly said that she will cover the bills and that it’s her job as a mom, blah blah blah. While this may be true, it doesn’t prevent crippling guilt over the fact that these appointments alone will probably cost around $2000.

Not exactly...