Stunted Growth

August 26, 2010

Well the results from my hell-test are in. I am indeed growth-horome deficient. You wouldn’t guess it looking at me, I am 6’4″. But it only causes growth issues if it starts when your a child. To quote our ever present scholar wikipedia:

Adults with GHD present with non-specific problems including truncal obesity with a relative decrease in muscle mass and, in many instances, decreased energy and quality of life.

Hmm.

I got my second testosterone shot on tuesday, I even was able to man up and do it myself. So from now on I’ll be doing my injections at home. I figure I’ll get used to it pretty quickly if i start having to do the daily injections.

Meet and greet

August 12, 2010

Alright everyone, today I’d like to introduce you to someone who is very close to me. He has been with me for quite some time now and is really a part of me. He’s my little buddy, he goes wherever I go and he does whatever I do.

I’d like you to meet Phil. My tumor.

Don’t see him? Thats OK neither do I. He’s kinda shy being only 2mm big and all. But my doctor assures me he’s there. You could say he’s really gotten inside me.

Lame tumor puns aside I’m doing well. As I said before the confirmation wasn’t a big surprise so I’ve taken the news quite well.I don’t feel any different right now after the testosterone shots (and if I did it would be psychosomatic) but they should start perking me up in a few weeks. I have no doubt that soon I will reach a level of manliness that I will be able to spontaneously grow body hair by flexing.

This

Well this post isn’t going to go exactly as I wanted. What I wanted to do was link the scene from Kindergarten Cop where Arnie… you know what? Screw it.

Now promptly disregard the theme of that message. I do have a tumor. It is a very small and 99% likely to be benign, but a tumor none-the-less. The tumor is about 2mm and is on my pituitary gland, it is excreting prolactin which is what screwing up my testosterone. It is not what caused my hydrocephalus.

Today I got manly-juice injected into my butt.

In other words I am now getting bi-weekly testosterone injections and am taking Cabergoline to reduce the levels of prolactin in my system. I may eventually stop getting the testosterone if my system figures out that its supposed to be making it on its own. But I should expect to take the pills for a long period of time.

I am also going to be tested to see if I need to have growth hormone injections as well. Normally we would wait a few months to see how I feel with the testosterone injections, but seeing as I may be losing my health insurance and the test is around $1000 I’ve decided to get it out-of-the-way.

If I do require the growth hormone it will result in me taking a daily injection. I’m hoping I don’t need this, as it is very very expensive. The injections cost anywhere from $500-$750 dollars a month. That and I hate needles. A lot.

All in all, none of this is really a surprise. And it could have been a lot worse.

Positively Positive

August 1, 2010

I received some test results in the mail today, seems that I don’t have mono. This is a good thing, I don’t think i could handle one more thing that’s primary goal is to make me feel tired and ultra-poopy.  Wheather this means I have strep or a staph infection or something else remains to be seen. Maybe it was just some kind of cold or mild flu bug, wouldn’t tat be cool?

This whole “You don’t have another terrible sickness” thing has got me feeling all sun-shiney and hopeful, so I’ve decided to try and put a positive spin on the whole “You may have a brain tumor.” (Holy crap, way too many quotation marks in that sentence.)

So without further ado,  in no particular order here is a list  of a few good things about potentially having a tumor/cancer:

I won’t have to worry about global warming.

I won’t feel compelled to recycle. (You may be saying, “But its for the children!” Sorry, at this moment I am unable to have any so I’m playing the selfish card.)

I’ll have something to say to the old-ladies who give me dirty looks when I park in a handicapped space.

If I ever visit a theme park I’ll get to go in the short lines.

I wont have to stress that apparently everything is carcinogenic.

Best of all?

Not having to deal with stupid people anymore.

:|

July 28, 2010

Doctors appointments all day yesterday and one today. Woo.

I saw the rheumatologist, he says that I have a “Connective tissue auto-immune disease”, when I asked what this meant he said “Its like Lupus, but not as bad”. He’s ordered more tests and I have future apps, as is par for the course.

The endocrinology visit was a bit more eventful, Dr.Goldstein didn’t start treatment as he wants to know more about what is causing the issues I’m having. He said he thinks I have a tumor on my pituitary gland, so I have another round of MRI’s to do. He said because my prolactin levels were so high last year when I first saw him he was concerned, so we did more lab work to see where they were at.

Basicly there are two courses of action to be taken. If the Prolactin levels are still high it means that my hippocampus isn’t talking to my pituitary gland,which means my pituitary gland isn’t telling my manly bits to do their job. I will have to take a pill every day and have testosterone shots. He said sometimes with this pill people get better and don’t have to get treatments anymore, but that I should expect to have to take it for several years at least.

The other option is that my prolactin levels have come down, which means I will just have to have the hormone replacement therapy, which means just the shots, but definitely for the rest of my life. We talked about different treatment options and the shots seem to be the best course, they are far cheaper than the patches. And while I have no fondness of needles and the thought of 27 shots a year makes me squeamish with the potential loss of health insurance money matters more than ever.

As far as the whole “He thinks I have a brain tumor” thing goes, I’m honestly not surprised or worried. This would explain why I have hydrocephalus and all my other varying problems. And as terrible as it sounds, with something like a brain tumor I can go to SSD and be all “This isn’t going away. Pay me!”